Palliative Care Project

In Sweden, around 500 children under the age of 19 die every year due to illness. Preparing for the impending death of the child often tests families to their limits. They risk long-term physical and psychiatric health impairment as well as socioeconomic problems. Being able to care for children at home can counteract those risks. Currently, pediatric palliative care only exists in the Stockholm area, and is not available in any other part of the country.

This project aims to:

  • Develop a mobile care team, comprised of a physician and nurse to care for children at home in and around Gothenburg.
  • Train eight health care professionals (nurses, physicians and other health care personnel) in pediatric palliative care to build capacity.
  • Eventually expand services to severely ill children and their families across the country.

Planned Outcomes
Easing the suffering of severely ill children and mitigating long-term consequences for families. Access to pediatric palliative care at home for children in regions outside the Stockholm area. Include siblings and parents of severely ill children in the program to reduce their suffering and long-term consequences. Potentially provide access to specialized care throughout the country.

Next steps
Over the course of the first half of 2016, the project planning should be finalized. In addition we will define
monitoring targets and finalize the contract with Ersta Sköndal University College. The first trained nurses will
offer 24/7 home care as well as phone support by the summer.

 

Ersta Sköndal University College

Over the next five years, research at Ersta  Sköndal University College will contribute  to the  development of knowledge within  health care, care and social work in such a way that people’s right to live in dignity, autonomy, participation in decision-making and influence are maintained and developed. A specific objective, as well as concerning patients in health care, and the users and clients of care and social work, along with relatives and professionals within these areas, is to strengthen the research base of the university college’s degree programmes.